HIV: The FPA Guide

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Last update: July 2021
Review date: Jul 2024
Version: 15.01.21.07.W

HIV: The FPA Guide

HIV

HIV (human immunodeficiency virus) is a virus that damages your immune system. Once someone acquires HIV, it remains in their body for the rest of their life. People diagnosed with HIV are said to be living with HIV.

There’s currently no cure for HIV. However, treatment enables most people with HIV to live a healthy life with a normal life expectancy, especially if they’re diagnosed soon after getting the virus.

After 6 months of successful treatment, a person living with HIV can’t transmit it to sexual partners. This is known as ‘undetectable equals untransmittable’ or ‘U=U’.

HIV can be transmitted in a few ways, all of which can be prevented. This guide is mostly about sexual transmission. It has information about HIV, what you can do if you’re worried you might have HIV, and advice on how to protect yourself and your sexual partners.

HIV is a virus. If it’s not treated, it can weaken and damage your body’s defence system (the immune system) so that it can’t fight off infections. HIV treatment stops this happening.

If someone’s immune system is damaged by HIV (usually over many years), they may develop one or more serious infections and illnesses, called AIDS-defining illnesses. Sometimes this is called an AIDS diagnosis. AIDS stands for acquired immune deficiency syndrome, but the term isn’t used very often now. Late-stage or advanced HIV is sometimes used instead.

Almost all people living with HIV who are diagnosed early enough and have effective treatment won’t go on to develop an AIDS- defining illness. It’s also possible to recover from an AIDS diagnosis with treatment.

HIV can be transmitted (passed on) from one person to another through sexual contact, and in a limited number of other ways.

More than 9 out of 10 people who accessed HIV care in the UK in 2019 acquired HIV through sexual transmission.

Most people diagnosed with HIV are on treatment which will make the virus undetectable in their blood. This means they can’t transmit the virus to sexual partners – see How do I prevent HIV transmission during sex?

HIV is far more likely to be passed on if someone’s unaware they have HIV. This is one reason why regular testing is so important – see How will I know if I’ve acquired HIV?

HIV can be passed on through blood, semen (cum), pre-ejaculate (pre-cum), vaginal and anal fluids and breast milk.

It can be passed on through vaginal or anal sex without a condom and without using PrEP – see What is PrEP and can I get it to prevent HIV? – it can also be passed on by sharing sex toys with another person.

It’s possible to pass on HIV through oral sex (going down, giving head) but the risk’s much lower than from vaginal or anal sex.

HIV can also be transmitted by sharing needles and other injecting equipment.

If you’re pregnant and living with HIV, it’s possible to transmit the virus to the baby before or during birth, or by breastfeeding. This is extremely rare in the UK as transmission is prevented with HIV treatment – see What happens if I’m pregnant and find out I’m HIV positive?

You can’t acquire HIV from hugging, saliva, kissing, sneezes, coughs, sharing baths or towels, from swimming pools, toilet seats or from sharing cups, plates or cutlery. You can’t acquire HIV from any animals or insects, including mosquitoes.

The following measures can help prevent HIV transmission during vaginal or anal sex.

  • A condom or internal (female) condom. For anal sex, use water-based or silicone-based lube to reduce the risk of the condom tearing. Condoms also help protect you from other sexually transmitted infections (STIs)
  • Treatment as prevention – when you or a partner are living with HIV and on effective treatment – see What is treatment as prevention?
  • Pre-exposure prophylaxis (PrEP) – see What is PrEP and can I get it to prevent HIV? Condoms or dams (latex or plastic squares) can help protect you from getting or passing on HIV and other STIs during oral sex.

If you’re at higher risk of acquiring HIV, regular testing can help keep you and your sexual partner(s) healthy.

People who know they’re living with HIV can access treatment to reduce the level of virus in their body. When the level of virus is close to zero, it’s known as having an undetectable viral load or being undetectable.

When a person living with HIV has been on successful treatment for 6 months and has an undetectable viral load, they can’t transmit HIV to sexual partners. This is called ‘treatment as prevention’ (TasP). It’s also known as ‘undetectable equals untransmittable’ or ‘U=U’.

In the UK, more than 9 out of 10 people on HIV treatment have an undetectable viral load.

PrEP (pre-exposure prophylaxis) is medication taken by someone who’s HIV negative to prevent them acquiring HIV. It’s an effective way to prevent transmission. It’s available across the UK for people who may be at higher risk of getting HIV. A clinician will talk to you to assess this.

PrEP doesn’t help protect you from other sexually transmitted infections such as chlamydia, gonorrhoea and syphilis, so you may need to use condoms as well.

  • England: PrEP is available on the NHS from sexual health clinics
  • Northern Ireland: all genitourinary medicine (GUM) clinics offer free consultation and assessment for PrEP. People are then referred on to a free centralised service to access PrEP
  • Scotland: PrEP is available on the NHS from sexual health clinics
  • Wales: PrEP is available on the NHS, through sexual health clinics

Some people choose to buy PrEP online or from private clinics. If you’re thinking about taking PrEP, you can talk with a sexual health clinic who can help you decide if it’s right for you and what you need to do before you start taking it. See Prepster.info or iwantprepnow.co.uk for more information.

Post-Exposure Prophylaxis (PEP) involves taking HIV treatment within 3 days (72 hours) of possible exposure to HIV, to prevent infection. It’s a course of HIV treatment taken for 4 weeks. It’s more effective the sooner you take it.

PEP is an emergency treatment. It’s usually only given if you’ve had sex without a condom (and you’re not taking PrEP) in the following situations:

  • anal or vaginal sex with someone who’s HIV positive and not taking treatment, or if the virus is currently detectable in their blood
  • anal sex, where you were the receptive partner, with someone who has a higher chance of having HIV but hasn’t recently been tested.

PEP may also be given in some other situations such as after a sexual assault.

You can get PEP at a sexual health or genitourinary medicine (GUM) clinic or an accident and emergency (A&E) department. A doctor or nurse will ask you some questions to find out if PEP is suitable for you.

It’s extremely rare to acquire HIV when receiving healthcare in the UK.

When caring for any patient, all health professionals in the UK – such as dentists, doctors, midwives and nurses – must follow infection control procedures which help prevent HIV and other blood-borne viruses.

In the UK, organ donors and blood from blood donors are tested to reduce the risk of HIV being transmitted through blood, blood products or donated organs. There have been no new cases of HIV due to blood donation in the UK for more than 18 years.

Some countries don’t have the same standards of medical and dental care as the UK, so there may be a risk of HIV transmission from blood products or un-sterile medical equipment if you receive healthcare in another country.

Anyone can acquire HIV. You don’t need to have lots of sexual partners.

In the UK, fewer than 2 in 1,000 people are living with HIV, but people from some groups are affected more than others.

This includes gay and bisexual men and their female sexual partners, Black African people, people who inject drugs, sex workers, people in prison, trans and non-binary people, and people from countries with high rates of HIV and their sexual partners.

If any of the above applies to you, and you’re sexually active, you may be at higher risk of acquiring HIV than the overall population.

If you have sex without a condom with new partners, or if you or a partner have sex without a condom with other partners, then regular HIV tests can help to keep you and your sexual partner(s) healthy.

Many people living with HIV have no obvious signs and symptoms. About 2 in 5 people newly diagnosed with HIV in the UK are diagnosed late – this means they’ve been living with undiagnosed HIV for a number of years.

Most, but not all, people who acquire HIV will have some symptoms within a few weeks of getting the virus.

This is known as seroconversion illness and can include fever, a rash over the body, sore throat, headache, feeling generally unwell, aches and pains, night sweats, weight loss, tiredness, swollen glands, and illnesses like meningitis. Not everyone has these symptoms and they’re easily mistaken for flu or other common illnesses.

After the first few weeks, most people living with HIV will live for years without any signs or symptoms. If it’s not treated, HIV will eventually damage a person’s immune system until they start to develop serious illnesses or infections.

You can only be certain you’re living with HIV if you have a test. If you or a partner think you might have been exposed to HIV, it’s important not to delay seeking advice and getting a test.

Even if you don’t have symptoms, an HIV test is advised every time one of the following applies:

  • you or a partner have another sexually transmitted infection
  • you’ve recently had vaginal or anal sex without a condom with a new partner
  • a sexual partner tells you they’re living with HIV
  • you’ve shared needles or injecting equipment
  • you’re pregnant or planning a pregnancy.

Regular testing is advised if you’re sexually active and from a population that’s more affected by HIV – see How common is HIV in the UK?

If you’re unsure about your HIV status, there are services you can go to for a test, advice and information – see Where can I get more information and advice?

An HIV test checks your blood for HIV antibodies and antigens to see whether the virus is in your body. Antibodies are substances made by your immune system to try and fight the virus. Antigens are a part of the virus.

Anyone can have a test even if you don’t have any signs and symptoms.

A test usually involves taking a sample of blood and sending it to a lab to be tested.

It’s also possible to test for HIV using a spot of blood from your finger (made with a pinprick).

Cervical screening (smear) tests, routine blood tests and swabs won’t detect HIV. If you’re not sure whether you’ve been tested for HIV, just ask.

It’s important not to delay getting a test if you think you might have been exposed to HIV. If you think you might have been at risk in the last 3 days (72 hours) you may be able to get PEP – see What is PEP and how soon do I need to use it to prevent HIV?

If you’ve acquired HIV, it takes time for there to be enough antibodies or antigens – see What is an HIV test? – in your blood to show up on an HIV test. This time is sometimes called the ‘window period’.

The length of the window period depends on the type of test you take.

For tests where blood is taken from your arm and sent to a lab, or where you send your own blood sample to a lab by post, the window period is 45 days.

For self-tests which take a spot of blood from your finger, the window period is 90 days (3 months).

If you get tested during the window period, your test result may be negative even if you do have HIV. If your test result is negative but you’ve only recently been at risk, you’ll be advised to have a follow-up test to confirm the result.

There are different services you can go to. You can also use a postal testing kit or a self-test (where you read the result yourself). Choose the one you feel most comfortable with.

An HIV test can be done in person at:

  • a sexual health clinic or genitourinary medicine (GUM) clinic
  • an HIV testing centre run by a charity
  • some contraception clinics and young people’s services
  • many GP surgeries
  • a private clinic (for a fee)

People who inject drugs may be able to get a test through a local drugs service.

Antenatal (pregnancy care) services and some gynaecology services will offer a test.

In some areas, testing is done by trained staff in places such as nightclubs, community events and churches.

If you’re worried that you may have been exposed to HIV, don’t wait to be offered a test. Go to a clinic and ask for a test or get a postal kit or self- test kit (see below).

Postal (self-sampling) tests

Postal tests are available for free in many areas – see Where can I get more information and advice? – you can also buy them online and from some high-street pharmacies.

You take your own blood sample (self-sampling) and post it to a lab to be tested.

Self-tests (home tests)

You can buy an HIV self-test online (also known as a home testing kit) which can give you your result in around 15 minutes. You take a spot of blood from your finger and test it yourself. If you choose to buy a kit, check it has a CE mark and is licensed for sale in the UK.

Buying an HIV Self-sampling Test from the FPA:

Before buying either test it’s worth checking if there are free tests available in your area first.

If you’ve acquired HIV in the last 3 months, a self-test might not be able to detect the virus – see How soon after sex can I have an HIV test?

If you think you’ve been exposed to HIV in the last 3 months, ask for a test at a sexual health or GUM clinic.

For information on how to find a service see Where can I get more information and advice?

This depends where you had the test.

If you were tested in person at a clinic or other service, the doctor, nurse or health adviser will tell you when the result will be available. At most services, the result should be available within 1 week; some may be earlier.

Some clinics and local testing services also offer rapid HIV testing from a spot of blood from your finger. This is when you’re given the result in a short space of time (often within a few minutes).

The rapid test result will be either negative (no HIV antibodies detected) or reactive (HIV antibodies detected). A reactive result is sometimes called a positive result, but it doesn’t necessarily mean you’re HIV positive. If you have a reactive result, another test will be done at a clinic (where they’ll take blood from your arm) to confirm whether or not you’re HIV positive.

If you used a postal kit, it usually takes around a week for the service to contact you with the results. They’ll advise you whether you need to visit a clinic in person for a confirmatory test and for treatment services.

If you used a home self-test, you’ll get the result in around 15 minutes. The test result will be either negative (no HIV antibodies detected) or reactive (HIV antibodies detected). If you have a reactive result, you’ll need to have another test at a clinic (where they’ll take blood from your arm) to confirm whether or not you’re HIV positive.

If you choose a self-test, it’s important to think about how you might feel and what support you may need if your test is reactive.

No tests are 100% accurate, but HIV tests should pick up almost all instances of HIV if done at the right time. All positive HIV tests are repeated to confirm the result.

If your test result is negative, and you haven’t been exposed to HIV in the 3 months before the test, you can be confident you didn’t have HIV at the time of the test.

HIV testing is available on the NHS free of charge to anyone.

In some areas, postal tests can be ordered free online – see Where can I get an HIV test? You can also choose to buy postal and self-test kits.

Anyone living in England is entitled to free HIV treatment on the NHS. HIV treatment is also available on the NHS in Scotland, Wales and Northern Ireland.

If HIV is diagnosed, you’ll be referred to a specialist HIV clinic. The clinic will do blood tests to monitor the stage of infection and you’ll be offered treatment straight away. Treatment is given as a pill or pills which you take every day.

At first, you’ll attend the clinic every few weeks or months but once you’re settled on treatment, you may only need to go twice a year.

At the moment, there’s no cure for HIV. The aim of treatment is to keep the level of HIV in your blood as close to zero as possible, so it can’t harm your immune system. When the level of virus is so low that a test can’t detect it, this is known as an undetectable viral load and is the best result you can get from treatment. This helps keep you healthy and means you can’t transmit the virus to your sexual partner(s).

The earlier that HIV is diagnosed, and treatment started, the more successful it’s likely to be at keeping you healthy.

Your HIV clinic can give you full information about the best treatment options for you, possible side effects and long-term effects of treatment.

HIV support organisations can also provide this information – see Where can I get more information and advice?

During pregnancy, treatment can be given to prevent the virus being transmitted to the baby – see What happens if I’m pregnant and find out I’m HIV positive?

It’s important that HIV is treated and monitored by specialist doctors and nurses.

Untreated HIV will cause long-term damage to your health. Eventually it can develop into late- stage HIV infection, which can lead to death.

This may happen more quickly in some people than others, so if you’ve been at risk of HIV it’s important to get tested so you can begin treatment if you have the virus.

An HIV test can’t tell you how long you’ve been living with the virus.

After you’re diagnosed, blood tests will look at the level of damage to your immune system. The results may indicate whether you’ve been living with the virus for a longer or shorter time but can’t confirm this.

If you feel upset or angry about having HIV and find it difficult to talk to a partner, family or friends, don’t be afraid to discuss how you feel with the staff at your clinic or a support organisation – see Where can I get more information and advice?.

You don’t have to share your HIV status if you don’t want to. It may take some time to adjust to living with HIV.

Staff at your HIV clinic can support you to tell partner(s) when you’re ready, including support with talking to a current or long-term partner about your diagnosis.

They’ll also advise you on ways to prevent HIV transmission to your partner(s), including through treatment and condom use.

You can contact partners yourself or staff at the service can contact them, with your permission. This is called partner notification.

They’ll be sent a message to say that they may have been exposed to a sexually transmitted infection (STI) and to suggest they go for a check-up. It may or may not say what the STI is. The message won't have your name on it, so your confidentiality is protected.

You're strongly advised to tell your partner(s), but it isn't compulsory. The staff can discuss with you which of your sexual partners may need to be tested.

Information about your HIV test should only be given to someone else with your permission.

Talk to the doctor or nurse if you’re concerned about your results being kept confidential.

Yes. You can take treatment during pregnancy that will stop HIV from being passed on to your baby in pregnancy and birth.

In the UK, fewer than 1 in 100 babies born to people living with HIV during their pregnancy acquire the virus.

It’s possible for someone living with HIV to conceive a child with an HIV negative partner without transmission occurring (for example, because they’re on treatment). Your HIV clinic can give you advice on this.

If you’re living with HIV and could get pregnant, your clinic will support you with your reproductive health choices and with pregnancy and birth if you decide to have children.

You’ll be offered an HIV test as part of the routine screening early in your antenatal care.

If you’re HIV positive, you’ll be referred to a specialist HIV clinic. The staff will help you understand the diagnosis and take immediate steps to prevent the baby acquiring HIV during your pregnancy. They’ll continue to support you through your pregnancy, birth and beyond.

In the UK, you’ll be advised to use formula milk to prevent the low risk of transmitting the virus to the baby through breastfeeding. If you feel strongly that you want to breastfeed, you can discuss this with your clinic. They’ll talk through the benefits and risks with you and can support you to breastfeed, but they’ll need to monitor you and your baby closely.

The following measures will help protect you from getting and passing on HIV and most other sexually transmitted infections (STIs), such as chlamydia, gonorrhoea and syphilis.

  • Use external condoms or internal condoms (also known as female condoms) every time you have vaginal/frontal or anal sex
  • If you have oral sex (going down, giving head), the advice is to use a condom to cover the penis, or a dam (latex or plastic square) to cover the vulva (external female genitals) or the anus
  • If you’re not sure how to use condoms correctly - see our guide to using condoms
  • Avoid sharing sex toys. If you do share them, wash them or cover them with a new condom before anyone else uses them
  • Before having sex without a condom, make sure you and any new sexual partner both get tested for STIs


And:

  • If you can, avoid using spermicidally lubricated condoms. The spermicide commonly contains a chemical called nonoxinol-9, which may increase the risk of HIV and other infections.
  • If you think you may be at higher risk of HIV, you can consider taking PrEP, a medication that will prevent you acquiring HIV. PrEP doesn’t prevent other STIs. See What is PrEP and can I get it to prevent HIV?

Information and support on HIV

Information on having children when you’re living with HIV can be found at https://www.aidsmap.com/about-hiv/having-baby-when-you-are-living-hiv

HIV testing services

Order a free postal testing kit:

And:

And:

The Sexual Health Helpline gives confidential advice and information on sexual health - including contraception.

The number is 0300 123 7123. It's open Monday to Friday from 9am to 8pm and at weekends from 11am to 4pm.

You can also find our full range of Family Planning Association's patient information guides here.

Find details of sexual health clinics and services, GP surgeries and pharmacies on these websites:

Most methods of contraception don't protect you from sexually transmitted infections (STIs).

Condoms and internal condoms (also known as female condoms), used correctly and consistently, can help protect against STIs.

Try to avoid using condoms that are lubricated with spermicide. Most spermicides have a chemical called nonoxinol-9, which may irritate the skin and increase the risk of HIV and other infections. Regular lubricated condoms are fine.

For more details see our sexually transmitted infection guides here.


A final word

This guide booklet can only give you general information. The information is based on evidence-based guidance produced by The British Association for Sexual Health and HIV (BASHH) and the UK Health Security Agency.

The NAT (National AIDS Trust) also gave their kind assistance. Thank you.

This guide was accurate at the time of writing. Guides are reviewed regularly.

Last complete review: July 2021, last clinical update: July 2021, next review scheduled: Jul 2024.

If you’d like information on the evidence used to produce this guide or would like to give feedback, email fpadirect@fpa.org.uk.

Copyright, licencing and getting more copies

This guide is available under licence. To copy, share or reproduce any information from this guide you need prior written consent from the FPA.

To order copies of this guide go to fpa.org.uk/shop.

Medical professionals can also send a Purchase Order. For this guide please use reference: PO1051

Family Planning Association and FPA are trading names of Family Planning Ltd, 15486597.

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